Running For Change

Archives: Cane

If you want to run forever, some times you can not run today – I will not be running in the 2014 marathon

Life is funny. Hardly anything seems to go as predicted or hoped for. On the other hand, if it has, then perhaps you have not taken too many risks. Me, I love risks and adventure. This journey of marathon has certainly been an adventure filled with risks. As I have learned in 2012 and 2013, you can plan for what you believe will happen but will then be faced with elements you had never imagined. The brutal heat of 2012 struck me down and then the terrible bombing of 2013 redefined what I take for granted in life. Well, the 2014 year has introduced me to an element of challenge that I would have never predicted would stand in the way of me and finally cross the finish line at the Boston marathon. That element is myself. Continue reading

Do not grab me

I remind myself every day that people have good intentions. Sure, they may do or say something that is ignorant, but they do have good intentions. This does not allow for me to feel that what they have said or done is acceptable, but it simply helps me understand and be empathetic. More often than not, I find myself working very hard to practice this when people are trying to be of assistance, but are actually being insensitive and honestly unawaringly insulting.
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I am kind of like Bruce Willis

For as long as I can remember, I have narrowly escaped numerous situations where I should have suffered grave injuries. For some reason, I have not been as hurt as one would have expected. On one hand, many of these situations have possibly been due to my constant need to adapt to the loss of vision and not meeting these new demands as well as I should. On the other hand, I believe I am also simply a goof. Regardless, the combination of these two qualities makes for some dicey, yet interesting experiences. Continue reading

Bleeding nipples, raw thighs and tares… oh my.

Like I have stated before, I would have stopped doing this a long time ago if I was only doing it for myself. Marathon training is demanding and exhausting on a physical and mental level. Many people have asked me what I believe is the most challenging part about doing all of this. Many things are challenging, but I would say that the tole all of this takes on my body is one of the most exhausting pieces to this journey.
Until I lose enough fat off my thighs, I typically develop a rash from engaging in long runs. When I start focusing on a marathon, some of the first few long runs result in a raw rash on my thighs. Continue reading

I hated my cane

Shortly after I was diagnosed with Choroideremia (at age 14), my parents began reaching out to the state to identify what services and resources may be available for me to utilize.  I was also diagnosed as being legally blind, which meant I had vision that was 20/200 or worse.  This status allowed for me to qualify for state services, as well as federal.  In the months following my diagnosis, I was connected with Vocational Rehabilitation for the blind and was assigned to a wonderful case manager named Scot.

Scot then connected my family and I with another gentleman who worked as an O.M. Instructor, otherwise known as an orientation and mobility instructor.  These folks work with those who have mobility impairments to learn how mobility devices are used.  They also offer guidance in navigating various environments which present their own unique challenges.  From what I can recall, I hated this.  I hated it with all of my heart and was silent.  Those first few months and that first year were extremely challenging.  To be honest, I think I have suppressed much of my memory from those days.  However, I can certainly recall some of my first uses and impressions of having a cane. Continue reading