I am a marathon runner for the glory of others. My mission is to stand upon the shoulders who have come before me to bring others to new heights of possibility, freedom, respect and peace. I live, eat and breathe for this 26.2 mile trek to invite those in and outside of the disability community who have been told that they can not do or be something because of who they are to no longer doubt themselves. I run, fall, laugh, cry and bleed to create opportunity, dialogue and the amity that is needed in order to break free from these external and internal sources of doubt. Every step and rop of sweat is for a greater tomorrow. I run for change.
After 14 confusing years of bumping into things at night, getting hit in the face with basketballs and still bumping into things during the day, I was diagnosed with Choroideremia. Choroideremia (CHM) is a degenerative retinal condition which causes loss of vision. As lucky as I was to be one of the 6,000 or so in the U.S. with this condition, I was also special enough to have a very strong case of CHM. My loss of vision was extremely rapid and always has been.
How did I handle this when I was young? Not so well. Then, my denial, or poor form of cooping, came to a breaking point and life changed. I spent the better half of my life coming to understand what I think it means to be aperson with a disability, what in our society is truly “disabling” and finding my own way to make the world a better place for those in and outside of the disability community. Shortly after moving to Boston in 2010, I fell in love with the marathon culture and felt a calling to train and run in the Boston Marathon. Marathons, and especially ‘Boston, have become my vehicle for contributing to these positive changes for others. As my luck has been, nothing has gone according to plan, but that has made this journey, mission and this blog all the richer.
I hope that you take the time to read thorugh all of what I have to share and find joy in the other features of this site as well. More importantly, I hope that you find a connection with this story, find the drive to climb after your own goals and provide the same support for others. As my guide runners and I depict, this can not be done alone.